Resources - Journey of a Lifetime (JOL)

Where does one begin, after receiving a life-limiting or adverse perinatal diagnosis?

At Journey of a Lifetime (JOL), our desire is to equip and empower parents to advocate for the life and health of their baby.

INFORMATION

THE POWER AND PAIN OF WORDS: IS LETHAL LANGUAGE ACCURATE OR EVEN APPROPRIATE IN PERINATAL PALLIATIVE CARE?

INFORMATION ON VARIOUS PERINATAL DIAGNOSES

WHY TRAUMA INFORMED CARE?

HOPE & ENCOURAGEMENT

The Proper Catholic and Pro-life Response to Life Limiting Anomalies: Moving Beyond Perinatal Hospice

https://benotafraid.net/wp-content/uploads/2025/01/Moving-Beyond-Perinatal-Hospice-EM_December_24-final-Marty-McCaffrey.pdf?fbclid=IwY2xjawLRL-lleHRuA2FlbQIxMABicmlkETFscVR0YmtiZXpVMzgxc2JSAR6_ICVupjTmhKxB41Y7OAtf0sKtkcb4OYDtpPJ9iK3pwKkggOazs8eEb3QWfA_aem_bBTLY7rpYsMzsh0Kl1AVUA

Listen to Dr. McCaffrey speak on how he came to learn that many of the Trisomy diagnoses are not “lethal”:

Death and life are in the power of the tongue,

and those who love it will eat its fruits.

Proverb 18:21 ESV

DISCLAIMERS AND TERMS OF USE

Journey of a Lifetime (JOL) does not provide any medical care or treatment (e.g. prenatal or postpartum medical care; high risk obstetrics or maternal fetal medicine; mental, emotional, or behavioral health; does not prescribe, or refer for birth control/contraceptives or devices, remove IUDs; provide fertility testing or treatment for infertility; replacement or gender reassignment hormone therapy; does not provide vaccinations or immunizations; does not provide prenatal or genetic testing; and does not perform or refer for abortion services. This website is not intended to be direct medical, legal, or ethical advice for your specific situation. Please contact your physician, attorney, or clergy for additional help. If this is a medical emergency, please dial 911 or go to the nearest emergency room immediately. Journey of a Lifetime (JOL) accepts no liability for the consequences of any actions taken on the basis of the information provided. Journey of a Lifetime (JOL) provides life-affirming trauma informed care - including, but not limited to educational, emotional, spiritual and tangible support, advocacy, chaplaincy, and pastoral care - for moms and families that have received a life-limiting or other adverse perinatal diagnosis.

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